Disabled woman's carer to face court in SA
A carer for disabled Adelaide woman Ann Marie Smith has spent a night in custody and is set to face court charged with manslaughter over th
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CripChat Australia #198: Beyond the NDIS: Services and Supports for People with Disabilities
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CripChat Australia #197: Quality and Safeguard Reforms – Will They Protect People with Disabilities?
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CripChat Australia | On Ableism: Part 1: Discrimination, Prejudice, Intolerance
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CripChat Australia #181: Senate Inquiry on the NDIS Reform Bill: Bombshells and Revelations
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Jonathan Shar
Aug 7, 20203 min read
MD Advocates Offer Advice for Students With Neuromuscular Disorders Amid COVID-19
The event featured Christopher Rosa, PhD, former MDA board member and current assistant vice chancellor for student inclusion initiatives at
8 views0 comments
Jonathan Shar
Aug 7, 20203 min read
Aural Analytics To Power Speech-Based Endpoints For The Healey Center ALS Platform Trial at Mass Gen
Aural Analytics, Inc., a privately-held digital health company developing the world’s most advanced suite of clinical-grade speech analytic
7 views0 comments
Jonathan Shar
Aug 6, 20203 min read
Kelly Vincent takes a creative role with new SA theatre venture
While most people will know Vincent as a fierce advocate for people with disabilities and through her time as the Dignity Party’s representa
15 views0 comments
Jonathan Shar
Aug 6, 20202 min read
Sanfilippo Syndrome Robs Me of Closure
I have an interesting relationship with my sister, Abby. Because she has special needs, our relationship has always been rocky. I often wou
8 views0 comments
Jonathan Shar
Aug 6, 20203 min read
Australian Institute of Sport to be partly sold off and refashioned as Paralympic, women's sport cen
John Wylie says the plan will make the AIS a "global centre of excellence for women's sport"
The AIS currently costs around $15-20 million a
6 views0 comments
Jonathan Shar
Aug 6, 20204 min read
Using stem cells to restore lost functions due to spinal cord injury (SCI) has long been an ambition
Its researchers suggest that “for selected patients” regular coffee consumption could be a way of easing MS-related fatigue.
6 views0 comments
Jonathan Shar
Aug 6, 20203 min read
Implanted Neural Stem Cell Grafts Show Functionality in Spinal Cord Injuries
Using stem cells to restore lost functions due to spinal cord injury (SCI) has long been an ambition of scientists and doctors. Nearly 18,0
5 views0 comments
Jonathan Shar
Aug 6, 20202 min read
The History of Ehlers-Danlos Syndrome Research Is Fascinating
Pretty much anyone who’s read my column knows I work as a college counsellor, live on a farm, and have horses.
9 views0 comments
Jonathan Shar
Aug 6, 20203 min read
Good disability policy benefits everyone
The necessary restrictions that have been imposed on all of us during the COVID-19 pandemic have highlighted the challenges faced by Austra
5 views0 comments
Jonathan Shar
Aug 6, 20203 min read
Governments urged to prioritise Victorians with disability during second COVID wave
Disability groups say a holistic plan is urgently needed to protect Victorians with a disability during the state’s extended lockdown period
6 views0 comments
Jonathan Shar
Aug 6, 20202 min read
Scottish Government and Vertex Strike Deal for Access to Kaftrio
The Scottish Government and Vertex Pharmaceuticals have reached a deal to make Vertex’s Kaftrio (ivacaftor/tezacaftor/elexacaftor)...
10 views0 comments
Jonathan Shar
Aug 6, 20204 min read
AstroRx Slows ALS Progression at All Doses Tested, Trial Shows
Kadimastem’s cell therapy candidate, AstroRx, significantly lower the rate of disease progression in people with amyotrophic lateral scleros
26 views0 comments
Jonathan Shar
Aug 6, 20202 min read
IWBF complete 97% of assessments ahead of Tokyo 2020
The International Paralympic Committee (IPC) has agreed to grant additional time to the International Wheelchair Basketball Federation (IWBF
10 views0 comments
Jonathan Shar
Aug 6, 20202 min read
Kurt Fearnley elected Vice Chairperson of IPC Athletes’ Council
Multi-Paralympic and world champion Kurt Fearnley is taking on a new role as Vice-Chairperson of the International Paralympic Committee’s (I
11 views0 comments
Jonathan Shar
Aug 4, 20204 min read
Mental health website for people with intellectual disability created with help of those with lived
Key points:
Figures show almost 470,000 Australians live with an intellectual disability
About half of them will experience mental
11 views0 comments
Jonathan Shar
Aug 4, 20202 min read
Angelman Syndrome in Adults
While the first signs of Angelman syndrome usually appear in early childhood, adults with the disease can live long and full lives with...
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Jonathan Shar
Aug 4, 20204 min read
Younger people living in Melbourne aged care homes fear for their safety as coronavirus spreads
Key points:
About 1,500 younger people with disabilities live in aged care in Victoria
Many are there because they couldn't access
7 views0 comments
Jonathan Shar
Aug 4, 20203 min read
How rehabilitation impacts research and care of patients with cerebral palsy
Experts document progress made through rehabilitation interventions that improve quality of life for patients with cerebral palsy, in this
14 views0 comments
Jonathan Shar
Aug 4, 20203 min read
Safeguarding gaps actioned as final report handed down
The Marshall Liberal Government is actioning disability safeguarding gaps highlighted by the independent taskforce – including bringing fo
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