FDA Approves Targeted Treatment for Rare Duchenne Muscular Dystrophy Mutation
Today, the U.S. Food and Drug Administration granted accelerated approval to Viltepso (viltolarsen) injection for the treatment of Duchenne
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CripChat Australia #198: Beyond the NDIS: Services and Supports for People with Disabilities
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CripChat Australia #197: Quality and Safeguard Reforms – Will They Protect People with Disabilities?
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CripChat Australia | On Ableism: Part 1: Discrimination, Prejudice, Intolerance
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CripChat Australia #181: Senate Inquiry on the NDIS Reform Bill: Bombshells and Revelations
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Jonathan Shar
Aug 13, 20203 min read
DNA Methylation Patterns Before Birth and After May Help in Understanding Rett
Researchers at the Salk Institute for Biological Studies have mapped how DNA methylation — a process that controls gene expression — chang
6 views0 comments
Jonathan Shar
Aug 13, 20203 min read
New technology could serve as more reliable model of amyotrophic lateral sclerosis
A new study published today demonstrates that a technology developed at the University of Central Florida could serve as a more reliable cl
3 views0 comments
Jonathan Shar
Aug 11, 20202 min read
Women's AFL team suprises deaf teammate with Auslan rendition of club song
A Women’s AFL team in Brisbane has stunned one of their players by performing an Auslan rendition of their team song.
6 views0 comments
Jonathan Shar
Aug 11, 20203 min read
New report uncovers COVID-19 mental health toll on NFP sector
The financial pressures placed on charities and not for profits during the COVID-19 pandemic are beginning to have an impact on the mental
16 views0 comments
Jonathan Shar
Aug 11, 20203 min read
New Study Presents Cell-based Therapy for MN Diseases or Spinal Cord Disorders
The spinal cord is a bundle of nerves inside the spine that gives your body structure and support. Spinal cord injuries (SCIs) tend to be d
7 views0 comments
Jonathan Shar
Aug 11, 20203 min read
Denali, Biogen Partner to Move DNL151 Into Late-stage Parkinson’s Trials
Denali Therapeutics announced a partnership with Biogen to jointly develop and advance DNL151, an investigational small molecule treatment
7 views0 comments
Jonathan Shar
Aug 11, 20202 min read
City of Adelaide first in SA to trial iTouch contactless pedestrian button
The City of Adelaide is the first Council in South Australia to trial iTouch – a new contactless pedestrian push-button control.
3 views0 comments
Jonathan Shar
Aug 11, 20204 min read
New Streaming Channel Showcases Rare Disease Films
When the COVID-19 pandemic forced the postponement of a rare disease film festival originally slated for May, its organizers set out to fin
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Jonathan Shar
Aug 11, 20202 min read
AC Immune Working to Move TDP-43 Antibody Into Clinical Testing for ALS
AC Immune is planning to advance its investigational anti-TDP-43 antibody into clinical testing for neurodegenerative diseases, like amyotr
9 views0 comments
Jonathan Shar
Aug 10, 20205 min read
Overuse Of Remote Medical Consultations Threatens The Safety Of Disabled Patients
The human capacity to embrace change and pivot rapidly has been seen as one of the few positives to emerge out of the gloom of the pandemic.
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Jonathan Shar
Aug 10, 20202 min read
Lara MP John Eren receives widespread support after publicly revealing Parkinson’s diagnosis
Support has poured in for Lara MP John Eren after he publicly revealed his battle with Parkinson’s disease.
14 views0 comments
Jonathan Shar
Aug 10, 20201 min read
Show data on disabled virus impact: Labor
The Morrison government has defended its handling of NDIS participants during the COVID-19 pandemic as Labor demands more detail on how the
6 views0 comments
Jonathan Shar
Aug 10, 20202 min read
MS Queensland helps disability housing crisis that’s threatening safety of Gold Coasters
A SEVERE shortfall in specialist disability accommodation on the Gold Coast means Multiple sclerosis sufferers such as Thea Wren have spent
15 views0 comments
Jonathan Shar
Aug 7, 20201 min read
Episode 19: intellectual disability and ensuring we aren’t laterally ableist towards people wh
Summary CripChat is a weekly podcast produced and delivered by Australian Disability Limited, it aims to educate, entertain and inform...
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Jonathan Shar
Aug 7, 20203 min read
Ann Marie Smith's disability care worker Rosemary Maione arrested and charged with manslaughter
Key points:
Ann Marie Smith died in April from severe health issues
A woman has been charged with manslaughter
Police are conti
57 views0 comments
Jonathan Shar
Aug 7, 20202 min read
Study seeks best way to meet ‘tidal wave of rehab need’ remotely
A new one-year project is urgently seeking the best ways to remotely assess people with long-term physical conditions and those recovery
2 views0 comments
Jonathan Shar
Aug 7, 20202 min read
ACTCOSS welcomes housing announcements
The ACT Council of Social Service has welcomed the ACT Government’s announcement of a $61 million investment in public housing, including t
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Jonathan Shar
Aug 7, 20202 min read
'Very serious charges': Perth teen accused of assaulting student with a disability
A Perth teenager accused of assaulting a fellow high school student so severely he was hospitalised has been warned by a magistrate to tak
16 views0 comments
Jonathan Shar
Aug 7, 20204 min read
More than 30 residential disability services linked to Covid-19 outbreaks in Victoria
More than 30 residential disability services are linked to active Covid-19 outbreaks in Victoria, according to state government figures, a
18 views0 comments
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