Muscular Dystrophy community excited to finally reconnect at the Big Red Roll + Stroll
Muscular Dystrophy NSW (MDNSW) will be holding its first-ever Big Red Roll + Stroll (BRRS) community event, enabling people living with neu
top of page
CripChat Australia #198: Beyond the NDIS: Services and Supports for People with Disabilities
Play Video
CripChat Australia #197: Quality and Safeguard Reforms – Will They Protect People with Disabilities?
Play Video
CripChat Australia | On Ableism: Part 1: Discrimination, Prejudice, Intolerance
Play Video
CripChat Australia #181: Senate Inquiry on the NDIS Reform Bill: Bombshells and Revelations
Play Video
Australian Disability Limited
Watch Now
Share
Facebook
Twitter
Pinterest
Tumblr
Copy Link
Link Copied
Send Us your News and/or Sports Tip:
Search
Jonathan Shar
Sep 24, 20202 min read
Study Reveals Similar Spinal Surgery Outcomes in Rett Syndrome and Cerebral Palsy
Patients with Rett syndrome have similar spinal surgery outcomes to those of people with cerebral palsy (CP), according to new research.
24 views0 comments
Jonathan Shar
Aug 28, 20202 min read
Google’s Project Euphonia Asking Patients to Help With Speech Recognition Technology
Team Gleason and CureDuchenne have teamed with Google’s Project Euphonia to make automated speech recognition more accessible to people wit
7 views0 comments
Jonathan Shar
Aug 26, 20202 min read
Viltepso Commercially Available in the US for DMD Treatment
NS Pharma‘s Viltepso (viltolarsen) is now commercially available in the U.S. for people with Duchenne muscular dystrophy (DMD) amenable to e
16 views0 comments
Jonathan Shar
Aug 13, 20203 min read
FDA Approves Targeted Treatment for Rare Duchenne Muscular Dystrophy Mutation
Today, the U.S. Food and Drug Administration granted accelerated approval to Viltepso (viltolarsen) injection for the treatment of Duchenne
9 views0 comments
Jonathan Shar
Aug 7, 20203 min read
MD Advocates Offer Advice for Students With Neuromuscular Disorders Amid COVID-19
The event featured Christopher Rosa, PhD, former MDA board member and current assistant vice chancellor for student inclusion initiatives at
8 views0 comments
Jonathan Shar
Jul 31, 20203 min read
A Year After Gene Therapy, Boys With Muscular Dystrophy Are Healthier and Stronger
Two and a half years ago, a study published in Science Advances detailed how the gene-editing tool CRISPR/Cas-9 repaired genetic mutations r
3 views0 comments
Jonathan Shar
Jul 28, 20208 min read
A Boy With Muscular Dystrophy Was Headed For A Wheelchair. Then Gene Therapy Arrived
This is the story of a fatal genetic disease, a tenacious scientist and a family that never lost hope.
12 views0 comments
Jonathan Shar
Jul 28, 20202 min read
Virtual Walk & Roll Event On Sept. 12 Targeting Muscular Dystrophy Cure
With a goal of finding a cure to facioscapulohumeral muscular dystrophy (FSHD) by 2025, the FSHD Society’s third annual Walk & Roll To Cure
8 views0 comments
Jonathan Shar
Jul 24, 20204 min read
Researchers develop a novel method for diagnosing Duchenne Muscular Dystrophy
Duchenne muscular dystrophy (DMD) is a rapidly progressive form of muscular dystrophy caused by a mutation in the DMD gene.
4 views0 comments
Jonathan Shar
Jul 21, 20202 min read
A Good Sense of Humor Makes my Duchenne Diagnosis Easier
I like to think I’m pretty funny, at least that is until I work up the courage to say something in a conversation. A lot of my humour has to
21 views0 comments
Jonathan Shar
Jul 21, 20202 min read
Scientists create synthetic DNA-like molecules to battle muscular dystrophy
Muscular dystrophy is a group of genetic diseases causing progressive muscle weakness and damage over time.
5 views0 comments
bottom of page