Braille bombing Melbourne to raise accessibility awareness
Monash University researchers will “bomb” signage across Melbourne with stickers containing braille to highlight the importance of accessib
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CripChat Australia #198: Beyond the NDIS: Services and Supports for People with Disabilities
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CripChat Australia #197: Quality and Safeguard Reforms – Will They Protect People with Disabilities?
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CripChat Australia | On Ableism: Part 1: Discrimination, Prejudice, Intolerance
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CripChat Australia #181: Senate Inquiry on the NDIS Reform Bill: Bombshells and Revelations
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Australian Disability Limited
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Jonathan Shar
Apr 8, 20222 min read
Emyria adds second clinic in Perth ahead of EMD-003 registration trials
Emyria has added a second suite of Emerald Clinics consulting rooms in Perth on the back of continued appointment growth nationally
6 views0 comments
Jonathan Shar
Mar 31, 20222 min read
Stroke recovery technology that re-launches Life
Imagine a cup. Now reach for it. But you can’t. Not yet. You’ve had a stroke and your brain needs to relearn how to do things you used to d
11 views0 comments
Jonathan Shar
Dec 21, 20212 min read
Dementia Australia welcomes the launch of the first National Memory and Cognition Clinic Guidelines
Dementia peak body congratulates researchers from the Australian Dementia Network (ADNeT) on the release of the first Memory and Cognition
11 views0 comments
Jonathan Shar
Aug 28, 20202 min read
Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input
Raremark, an online rare disease patient community, has launched a digital platform called Xperiome, aimed at streamlining the search for ne
7 views0 comments
Jonathan Shar
Aug 28, 20203 min read
Pharnext’s PXT864 Shows Promising Neuroprotective Effects in ALS, Early Study Shows
Pharnext’s investigational oral combination therapy PXT864 prevents degeneration of motor neurons and their point of contact with...
9 views0 comments
Jonathan Shar
Aug 26, 20202 min read
Viltepso Commercially Available in the US for DMD Treatment
NS Pharma‘s Viltepso (viltolarsen) is now commercially available in the U.S. for people with Duchenne muscular dystrophy (DMD) amenable to e
16 views0 comments
Jonathan Shar
Aug 25, 20202 min read
Vertex Triple Combo, Kaftrio, Approved for CF Patients in EU With F508del Mutation
The European Commission (EC) approved Kaftrio (ivacaftor/tezacaftor/elexacaftor) in combination with Kalydeco (ivacaftor) to treat cystic fi
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Jonathan Shar
Aug 18, 20205 min read
Inside scientists’ quest to map, modulate social circuits in autism
One of the biggest mysteries in autism research is understanding how the condition’s discrete set of traits emerges from a multitude of...
6 views0 comments
Jonathan Shar
Aug 18, 20202 min read
First Patients Enrolled in Phase 2b Trial Testing MS1819 for Exocrine Pancreatic Insufficiency in CF
AzurRx BioPharma has enrolled the first three patients in its Phase 2b trial investigating MS1819 as a treatment for exocrine pancreatic ins
8 views0 comments
Jonathan Shar
Aug 18, 20202 min read
Innovate UK Grant Supports Early Work on Cell Therapy for ALS
Innovate UK has given a grant to Reflection Therapeutics to help fund research into new ways of protecting the nervous system from motor neu
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Jonathan Shar
Aug 14, 20205 min read
Motor difficulties in autism, explained
Most autistic people — 87 per cent, according to the latest estimate — have some sort of motor difficulty, ranging from an atypical gait to
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Jonathan Shar
Aug 14, 20202 min read
First Participants Dosed in Early Clinical Trial of Inhaled Therapy ARO-ENaC
A Phase 1/2 clinical trial assessing Arrowhead Pharmaceuticals‘ investigational inhaled therapy, ARO-ENaC, for the treatment of cystic fibr
9 views0 comments
Jonathan Shar
Aug 11, 20202 min read
AC Immune Working to Move TDP-43 Antibody Into Clinical Testing for ALS
AC Immune is planning to advance its investigational anti-TDP-43 antibody into clinical testing for neurodegenerative diseases, like amyotr
9 views0 comments
Jonathan Shar
Aug 4, 20204 min read
Mental health website for people with intellectual disability created with help of those with lived
Key points:
Figures show almost 470,000 Australians live with an intellectual disability
About half of them will experience mental
11 views0 comments
Jonathan Shar
Jul 31, 20202 min read
New Screening System Allows HEDGE Study Enrollment Without In-person Visits
A new screening system will allow people with hypermobile Ehlers-Danlos syndrome (hEDS) to participate in the worldwide Hypermobile Ehlers-D
6 views0 comments
Jonathan Shar
Jul 31, 20203 min read
A Year After Gene Therapy, Boys With Muscular Dystrophy Are Healthier and Stronger
Two and a half years ago, a study published in Science Advances detailed how the gene-editing tool CRISPR/Cas-9 repaired genetic mutations r
3 views0 comments
Jonathan Shar
Jul 31, 20204 min read
Thread-based Wearable Device May Help Diagnose, Monitor CF and Other Conditions
Researchers have developed the first thread-based flexible patch that can be sewn into clothing to monitor — in real-time — several molecule
13 views0 comments
Jonathan Shar
Jul 30, 20204 min read
Proteins — and labs — coming together to prevent Rett syndrome
New discoveries about the disruption of condensates in the neurodevelopmental disorder Rett syndrome provide insights into how cells compart
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Jonathan Shar
Jul 28, 20202 min read
Virtual Walk & Roll Event On Sept. 12 Targeting Muscular Dystrophy Cure
With a goal of finding a cure to facioscapulohumeral muscular dystrophy (FSHD) by 2025, the FSHD Society’s third annual Walk & Roll To Cure
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