Vertex Triple Combo, Kaftrio, Approved for CF Patients in EU With F508del Mutation
The European Commission (EC) approved Kaftrio (ivacaftor/tezacaftor/elexacaftor) in combination with Kalydeco (ivacaftor) to treat cystic fi
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CripChat Australia #198: Beyond the NDIS: Services and Supports for People with Disabilities
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CripChat Australia #197: Quality and Safeguard Reforms – Will They Protect People with Disabilities?
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CripChat Australia | On Ableism: Part 1: Discrimination, Prejudice, Intolerance
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CripChat Australia #181: Senate Inquiry on the NDIS Reform Bill: Bombshells and Revelations
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Jonathan Shar
Aug 18, 20202 min read
First Patients Enrolled in Phase 2b Trial Testing MS1819 for Exocrine Pancreatic Insufficiency in CF
AzurRx BioPharma has enrolled the first three patients in its Phase 2b trial investigating MS1819 as a treatment for exocrine pancreatic ins
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Jonathan Shar
Aug 14, 20202 min read
First Participants Dosed in Early Clinical Trial of Inhaled Therapy ARO-ENaC
A Phase 1/2 clinical trial assessing Arrowhead Pharmaceuticals‘ investigational inhaled therapy, ARO-ENaC, for the treatment of cystic fibr
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Jonathan Shar
Aug 4, 20202 min read
An Open Letter to the Chronically Ill Professional
It’s easy to look around and compare yourself to your peers. Maybe you didn’t get that promotion because you were sitting in doctors’ app
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Jonathan Shar
Jul 31, 20204 min read
Thread-based Wearable Device May Help Diagnose, Monitor CF and Other Conditions
Researchers have developed the first thread-based flexible patch that can be sewn into clothing to monitor — in real-time — several molecule
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Jonathan Shar
Jul 23, 20203 min read
Inflammatory Markers May Help Predict Exacerbations in Children with Cystic Fibrosis
Levels of inflammatory markers in the lungs may help predict pulmonary exacerbations in children with cystic fibrosis (CF).
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